Friday, June 6, 2014

Tumor and a disease.

These are the newest updates.  A benign tumor was found in my neck.  Doc said he didn't wanna take it out, I said, "okay."  I could feel something bigger in my neck, but I honestly thought it was just a swollen Thyroid.  I watched with quite a calm about me as the technician ran the sonogram over my throat.  Didn't have to be a doctor to see there was a mass there.  What did surprise me was how calm I was about it.  I knew whatever it was, it was gonna be okay.  I am just in so much pain, and so tired, I really don't care what they find anymore.  Glad I didn't stress over anything.  It's just a mass, like I figured.  Then at yesterday's appointment, I was diagnosed with Gilbert's Disease.  Totally not a big deal at all.  It's a genetic disease that makes processing biliruben in your liver harder.  Your biliruben levels are always high.  So side effects are jaundice, fatigue, stomach pain, loss of appetite, nausea and weakness.  You don't treat it with anything, you just live with it.  It's not dangerous, and not really a big deal.  At this point, it's just good to hear more things that make you so dang tired and with so much pain.  I do get tired of hearing, "well I have a friend with Fibromyalgia, and she can do a lot."  Or, "M.S. is okay if you just get the right treatment."  Unbeknownst to me, and apparently my doctor, if you've read about my illnesses online, or know someone who has it, you're an expert.  On the other hand, I also get tired of hearing, "I am so sorry you're going through this."  Chronically ill people only want acceptance.  I am not your friend with Fibromyalgia.  I can't explain why my body takes disease differently than someone you know, or other than what the internet says.  I also can't explain why some people die of disease, and some with the same disease can thrive.  I just don't know.  I also don't know why you feel sorry for me.  My life rocks.  Heck, you could be dealing with stuff I don't have to.  My children are healthy.  Some parents aren't afforded as much.  My husband doesn't lie to me.  He hasn't cheated on me.  He never raises his voice to me in anger.  I am the victim of a happy marriage.  I also don't deal with substance abuse, divorce, alcoholism, death, premature babies, tragic accidents, suicide, etc.  These things don't immediately effect my husband or my children.  These are demons people are facing every day.  So while yes, disease sucks coconuts, so do other trials.  I didn't pick mine, you didn't pick yours.  Don't look at me like I'm diseased.  Look at me like a human being that's just that; human.  So whatever you're going through, just know we're all sucking through something together.  :)

  

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